\u0130kranur\u2019un Ya\u015fam M\u00fccadelesi: Zamanla Yar\u0131\u015fan Bir Ailenin \u00c7\u0131\u011fl\u0131\u011f\u0131
\nAdana\u2019n\u0131n Ceyhan il\u00e7esinde ya\u015fayan \u015eehriban ve Mehmet Erta\u015f \u00e7ifti, 22 Temmuz 2024\u2019te d\u00fcnyaya gelen ilk \u00e7ocuklar\u0131 \u0130kranur\u2019u kucaklar\u0131na ald\u0131klar\u0131nda tarifsiz bir mutluluk ya\u015fad\u0131. Ancak bu mutluluk, hen\u00fcz 10 g\u00fcn sonra gelen a\u011f\u0131r bir te\u015fhisle yerini endi\u015feye b\u0131rakt\u0131. Minik \u0130kranur\u2019a Spinal M\u00fcsk\u00fcler Atrofi (SMA) Tip 1 tan\u0131s\u0131 konuldu.
\nSMA Tip 1, bebeklerde kas kayb\u0131na, hareket kabiliyetinin kaybolmas\u0131na ve solunum yetmezli\u011fine yol a\u00e7an \u00f6l\u00fcmc\u00fcl ve ilerleyici bir hastal\u0131k. Tedavi edilmedi\u011fi takdirde \u00e7ocuklar\u0131n ya\u015fam s\u00fcresini ciddi \u015fekilde k\u0131salt\u0131yor. \u0130kranur\u2019un tek umudu ise yurt d\u0131\u015f\u0131nda uygulanan ve gen tedavisi sa\u011flayan Zolgensma ilac\u0131. Ancak bu tedavinin maliyeti tam 1 milyon 880 bin dolar.<\/p>\n
Zamanla Yar\u0131\u015fan Bir M\u00fccadele
\n\u0130kranur hen\u00fcz 17 ayl\u0131k. Hastal\u0131k ilerledik\u00e7e kas kay\u0131plar\u0131 art\u0131yor, nefes almakta zorlan\u0131yor. Ailesi, \u201cHer ge\u00e7en g\u00fcn kritik bir \u00f6neme sahip. Tedavi gecikirse geri d\u00f6n\u00fc\u015f\u00fc olmayan kay\u0131plar ya\u015fanacak\u201d diyerek aciliyetin alt\u0131n\u0131 \u00e7iziyor.
\nKampanya, T\u00fcrkiye Cumhuriyeti Adana Valili\u011fi izniyle resmi hesaplar \u00fczerinden y\u00fcr\u00fct\u00fcl\u00fcyor. Ancak kampanyan\u0131n ba\u015flamas\u0131n\u0131n \u00fczerinden 17 ay ge\u00e7mesine ra\u011fmen hedeflenen tutar\u0131n yaln\u0131zca y\u00fczde 7\u2019sine ula\u015f\u0131labildi. Bu durum, aileyi daha da \u00e7aresiz hale getiriyor.
\nAnne \u015eehriban Erta\u015f, \u201cEvlad\u0131m i\u00e7in bir umut \u0131\u015f\u0131\u011f\u0131 olun\u201d s\u00f6zleriyle seslenirken, baba Mehmet Erta\u015f ise \u201cK\u0131z\u0131m\u0131z\u0131n g\u00f6zlerimizin \u00f6n\u00fcnde solmas\u0131na izin vermeyin. Bu y\u00fck\u00fc tek ba\u015f\u0131m\u0131za ta\u015f\u0131yam\u0131yoruz. \u0130kranur\u2019un hayat\u0131 sizin ellerinizde\u201d diyerek destek \u00e7a\u011fr\u0131s\u0131 yap\u0131yor.<\/p>\n
Bir Ailenin Hayali
\nErta\u015f ailesinin en b\u00fcy\u00fck hayali, k\u0131zlar\u0131n\u0131 parklara g\u00f6t\u00fcrmek, ona ayakkab\u0131 ve oyuncak alabilmek. Ancak \u015fu an d\u00f6rt duvar aras\u0131nda, solunum cihazlar\u0131n\u0131n g\u00f6lgesinde ya\u015f\u0131yorlar. Anne \u015eehriban, \u201cBir \u015fey olacak diye evlad\u0131m\u0131n yan\u0131ndan ayr\u0131lam\u0131yorum\u201d derken, k\u0131z\u0131n\u0131n \u00f6zg\u00fcrce d\u0131\u015far\u0131da gezebilece\u011fi g\u00fcnlerin hayalini kuruyor.<\/p>\n
Kampanya Detaylar\u0131 Topluma \u00c7a\u011fr\u0131 \u0130kranur\u2019un Ya\u015fam M\u00fccadelesi: Zamanla Yar\u0131\u015fan Bir Ailenin \u00c7\u0131\u011fl\u0131\u011f\u0131 Adana\u2019n\u0131n Ceyhan il\u00e7esinde ya\u015fayan \u015eehriban ve Mehmet Erta\u015f \u00e7ifti, 22 Temmuz 2024\u2019te<\/p>\n","protected":false},"author":5,"featured_media":20417,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7,10,12,18],"tags":[],"class_list":["post-20416","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-belediye","category-gundem","category-saglik","category-yasam"],"yoast_head":"\n
\nFaaliyet Sorgu No: 01.2025.2751<\/span>
\nAl\u0131c\u0131: \u0130KRANUR ERTA\u015e \u2013 Ziraat Bankas\u0131
\n\u2022 TL: TR250001002456980208245001
\n\u2022 Euro: TR680001002456980208245003
\n\u2022 USD: TR950001002456980208245002
\n\u2022 AED: TR410001002456980208245004<\/p>\n
\nErta\u015f ailesi, \u201cHer ba\u011f\u0131\u015f bir nefes, her destek bir umut\u201d diyerek t\u00fcm hay\u0131rseverleri kampanyaya kat\u0131lmaya davet ediyor. K\u00fc\u00e7\u00fck miktarlardaki yard\u0131mlar bile \u0130kranur\u2019un ya\u015fama tutunmas\u0131 i\u00e7in b\u00fcy\u00fck bir ad\u0131m olabilir.
\nBu \u00e7a\u011fr\u0131 yaln\u0131zca bir yard\u0131m iste\u011fi de\u011fil; bir annenin ve baban\u0131n \u00e7aresizli\u011finin yank\u0131s\u0131. \u0130kranur\u2019un kaybedecek zaman\u0131 yok. Toplum olarak kenetlendi\u011fimizde bir \u00e7ocu\u011fun hayat\u0131n\u0131 de\u011fi\u015ftirebiliriz.<\/p>\n","protected":false},"excerpt":{"rendered":"