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<\/p>\n","protected":false},"excerpt":{"rendered":"BA\u015eKAN ULUDA\u011e\u2019DAN 7 EYL\u00dcL DMD FARKINDALIK G\u00dcN\u00dc\u2019NDE ANLAMLI Z\u0130YARET<\/p>\n
Sar\u0131\u00e7am Belediye Ba\u015fkan\u0131 Bilal Uluda\u011f, 7 Eyl\u00fcl \u201dDuchenne Musk\u00fcler Distrofi Fark\u0131ndal\u0131k G\u00fcn\u00fc\u201d \u00e7ocu\u011fu kas erimesi hastal\u0131\u011f\u0131 ile m\u00fccadele eden Kaya Ailesi\u2019ni ziyaret etti. DMD hastal\u0131\u011f\u0131na dikkat \u00e7ekmek ve aileye moral vermek i\u00e7in ger\u00e7ekle\u015ftirilen ziyarette aile ile bir s\u00fcre sohbet eden Ba\u015fkan Uluda\u011f, DMD (Duchenne Musk\u00fcler Distrofi) hastas\u0131 Emre \u0130lhan ve K\u0131van\u00e7 Kaya karde\u015flerle de yak\u0131ndan ilgilenerek onlarla yapboz oynad\u0131 boyama yapt\u0131.<\/p>\n
Genetik temelli bir kas hastal\u0131\u011f\u0131 olan Duchenne Musk\u00fcler Distrofi (DMD) hastal\u0131\u011f\u0131 T\u00fcrkiye’de t\u00fcm kas sinir hastal\u0131\u011f\u0131 vakalar\u0131n\u0131n yakla\u015f\u0131k yar\u0131s\u0131n\u0131 olu\u015fturur. Adana\u2019da ise Kaya ailesinin bir \u00e7ocu\u011fu bu hastal\u0131kla m\u00fccadele ediyor. Polis memuru anne G\u00fcl\u015fah Karabulut ve e\u015fi Caner Kaya \u00e7ocuklar\u0131n\u0131n bu durumu kar\u015f\u0131s\u0131nda onlar\u0131n bak\u0131mlar\u0131 ile yak\u0131ndan ilgileniyor, tedavilerini s\u00fcrd\u00fcr\u00fcyor.<\/p>\n
7 Eyl\u00fcl \u201cD\u00fcnya Duchenne Musk\u00fcler Distrofi Fark\u0131ndal\u0131k G\u00fcn\u00fc\u201d dolay\u0131s\u0131 ile Sar\u0131\u00e7am Belediye Ba\u015fkan\u0131 Bilal Uluda\u011f\u2019\u0131n sosyal medya adresine bir mesaj g\u00f6nderen anne G\u00fcl\u015fah Karabulut hasta \u00e7ocuklar\u0131na moral olmas\u0131 i\u00e7in Ba\u015fkan Uluda\u011f\u2019\u0131 evlerine davet etti. Yap\u0131lan bu davete an\u0131nda cevap veren Ba\u015fkan Bilal Uluda\u011f, Y\u00fcre\u011fir \u0130l\u00e7esi Yenido\u011fan mahallesinde ya\u015fayan ailenin evlerine ziyarette bulundu.<\/p>\n
DMD hastas\u0131 Emre \u0130lhan ve karde\u015fi K\u0131van\u00e7 Kaya\u2019ya \u00e7e\u015fitli hediyeler veren ve onlarla yak\u0131ndan ilgilenen Sar\u0131\u00e7am Belediye Ba\u015fkan\u0131 Bilal Uluda\u011f\u2019a 8 ya\u015f\u0131ndaki Emre \u0130lhan Kaya yazd\u0131\u011f\u0131 mektubu okudu. \u00c7ocuklarla bir s\u00fcre sohbet eden Ba\u015fkan Uluda\u011f, onlarla yapboz oynad\u0131 boyama yapt\u0131.<\/p>\n
Duchenne Musk\u00fcler Distrofi (DMD) hastal\u0131\u011f\u0131n\u0131n \u00e7ocukluk \u00e7a\u011f\u0131n\u0131n en s\u0131k g\u00f6r\u00fclen kas hastal\u0131\u011f\u0131 olup, d\u00fcnyadaki g\u00f6r\u00fclme s\u0131kl\u0131\u011f\u0131n\u0131n yakla\u015f\u0131k 5 bin erkek \u00e7ocukta bir olarak g\u00f6r\u00fcld\u00fc\u011f\u00fcn\u00fc belirten Ba\u015fkan Bilal Uluda\u011f, \u00dclkemizde yakla\u015f\u0131k 10 bin civar\u0131nda bu hastal\u0131\u011fa yakalanm\u0131\u015f \u00e7ocuk oldu\u011funu belirtti. Anne G\u00fcl\u015fah Karabulut\u2019un kendilerine ula\u015fmas\u0131 ile bu ziyareti ger\u00e7ekle\u015ftirdiklerini kaydeden Ba\u015fkan Uluda\u011f, ama\u00e7lar\u0131n\u0131n 7 Eyl\u00fcl D\u00fcnya Duchenne Musk\u00fcler Distrofi Fark\u0131ndal\u0131k G\u00fcn\u00fcnde bu hastal\u0131\u011fa dikkat \u00e7ekmek oldu\u011funu belirtti.<\/p>\n
\u201cT\u00dcRK\u0130YE\u2019DE HER G\u00dcN B\u0130R \u00c7OCUK DMD HASTASI OLARAK DO\u011eUYOR\u201d<\/p>\n
T\u00fcrkiye\u2019de her g\u00fcn bir \u00e7ocu\u011fun DMD hastas\u0131 olarak d\u00fcnyaya geldi\u011finin alt\u0131n\u0131 \u00e7izen Ba\u015fkan Uluda\u011f s\u00f6zlerine \u015f\u00f6yle devam etti \u201cYap\u0131lan ara\u015ft\u0131rmalar bize g\u00f6steriyor ki T\u00fcrkiye\u2019de her g\u00fcn bir \u00e7ocuk DMD hastas\u0131 olarak d\u00fcnyaya geliyor. Maalesef bu \u00e7ocuklar\u0131m\u0131za te\u015fhis t\u0131bben 4 ile 4 bu\u00e7uk ya\u015flar\u0131 aral\u0131\u011f\u0131nda konulabiliyor. \u00dclkemizde \u015fu an d\u00fcnyada kesin tedavisi olmayan bu hastal\u0131kla m\u00fccadele eden yakla\u015f\u0131k 10 bin \u00e7ocu\u011fumuz var. Bizlerde Sar\u0131\u00e7am Belediyesi olarak, 7 Eyl\u00fcl \u201cD\u00fcnya Duchenne Musk\u00fcler Distrofi Fark\u0131ndal\u0131k G\u00fcn\u00fc\u201d nedeni ile ailemizi ziyaret ederek hem onlara hem \u00e7ocuklar\u0131m\u0131za moral vermek hem de bu hastal\u0131\u011fa dikkati \u00e7ekmek istedik. Modern t\u0131p her ge\u00e7en g\u00fcn ilerliyor, temennim bu hastal\u0131\u011f\u0131n tez zamanda ilac\u0131n\u0131n bulunarak yavrular\u0131m\u0131z\u0131n tedavilerinin sa\u011flanmas\u0131. Nazik ev sahipliklerinden dolay\u0131 anne G\u00fcl\u015fah han\u0131ma ve \u00e7ok de\u011ferleri e\u015flerine te\u015fekk\u00fcr ediyor, Sar\u0131\u00e7am Belediyesi olarak her zaman yanlar\u0131nda oldu\u011fumuzu belirtmek istiyorum\u201d diye konu\u015ftu.<\/p>\n
\u201cDMD HASTALI\u011eININ KES\u0130N TEDAV\u0130S\u0130 YOK\u201d<\/p>\n
DMD hastas\u0131 \u00e7ocuklar\u0131n\u0131n tedavileri ve ila\u00e7 teminlerinde herhangi bir s\u0131k\u0131nt\u0131 ya\u015famad\u0131klar\u0131n\u0131 dile getiren anne G\u00fcl\u015fah Karabulut, ama\u00e7lar\u0131n\u0131n bu hastal\u0131\u011f\u0131 ya\u015fayan \u00e7ocuklar i\u00e7in bir fark\u0131ndal\u0131k olu\u015fturmak oldu\u011funu s\u00f6yledi. Sar\u0131\u00e7am Belediye Ba\u015fkan\u0131 Bilal Uluda\u011f\u2019\u0131n kendilerini ziyaretleri ile \u00e7ocuklar\u0131n\u0131n \u00e7ok mutlu oldu\u011funu belirten G\u00fcl\u015fah Karabulut \u201cBiri k\u0131z iki erkek \u00fc\u00e7 \u00e7ocu\u011fumuz var. Bu hastal\u0131k erkek \u00e7ocuklarda g\u00f6r\u00fcl\u00fcyor. Kulland\u0131\u011f\u0131m\u0131z ila\u00e7lar ve tedavi s\u00fcresi bu hastal\u0131\u011f\u0131n yava\u015flamas\u0131n\u0131 sa\u011flasa da maalesef kesin sonu\u00e7 elde edilemiyor. O y\u00fczden hastal\u0131k riski ta\u015f\u0131yan anne adaylar\u0131n\u0131n evlenmeden \u00f6nce kesinlikle ta\u015f\u0131y\u0131c\u0131l\u0131k testi yapt\u0131rmalar\u0131n\u0131 \u00f6neriyorum. DMD hastas\u0131 \u00e7ocu\u011fu olan bir anne olarak, herhangi bir maddi ihtiyac\u0131m\u0131z yok. Bizler sadece moral ve motivasyona ihtiyac\u0131m\u0131z var. \u00d6zellikle bu hastal\u0131\u011f\u0131n \u00e7ocuklar\u0131m\u0131zda olu\u015fturdu\u011fu dezavantaja dikkat \u00e7ekmek istiyoruz. O y\u00fczden bug\u00fcn bizleri yaln\u0131z b\u0131rakmayan, Sar\u0131\u00e7am Belediye Ba\u015fkan\u0131m\u0131z Say\u0131n Bilal Uluda\u011f\u2019a hassasiyeti ve duyarl\u0131 davran\u0131\u015flar\u0131ndan dolay\u0131 te\u015fekk\u00fcr ediyorum \u201d dedi.<\/p>\n
<\/p>\n","protected":false},"excerpt":{"rendered":"
BA\u015eKAN ULUDA\u011e\u2019DAN 7 EYL\u00dcL DMD FARKINDALIK G\u00dcN\u00dc\u2019NDE ANLAMLI Z\u0130YARET Sar\u0131\u00e7am Belediye Ba\u015fkan\u0131 Bilal Uluda\u011f, 7 Eyl\u00fcl \u201dDuchenne Musk\u00fcler Distrofi Fark\u0131ndal\u0131k<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7,10,14,18],"tags":[],"class_list":["post-4604","post","type-post","status-publish","format-standard","hentry","category-belediye","category-gundem","category-son-dakika","category-yasam"],"yoast_head":"\n